One year ago tonight, I did not know what Spina Bifida was.
I did not know the feeling of sheer terror I would feel in less than 24 hours.
I was looking forward to getting the next day's ultrasound over with.
I was not worried about the comment, "I can't get all the measurements I need" I had heard the week before.
I was kind of looking forward to seeing Dr. P again.
I spent time reading and singing with Paisley.
I did not know what a shunt was or how it worked at all.
I did not know the majority of you reading this right now, you wonderful SB mommas, you!
I woke up on March 9, 2010.
I taught my 3rd graders most of the day.
I met Rodney for the doctor's appointment.
I waited in Dr. P's waiting room like we did many times during Paisley's pregnancy.
I had an ultrasound.
Cerebellum is low...
Let's continue down the spine...
Turn this way...
Scoot this way a little...
There's the defect...
I think your baby has Spina Bifida...
I'll go get Dr. P...
Rodney--what does this mean?
Me---I don't know.
Tears and fear for our little boy.
Neuro Tube Defect.
Likely bowel and bladder issues.
Surgery immediately after birth.
Here is a book you need to get about George.
I think your baby boy has a very good prognosis.
He's going to be just fine.
We talked some.
I wrote and discovered a sense of peace in making everyone important in our lives aware of exactly what was going on.
We googled and became even more terrified.
We found the first of some blogs.
A new family I had no idea even existed.
This whole group of people who had already done this.
We all have similar stories.
We have lived this scary roller coaster.
We all have beautiful miracle children.
Oh Dr. P you were SO right! Our Beckett is just fine. He is so much more than fine. You see, Beckett has made us appreciate our life so much. We do not take little things for granted like we used to. We fear what should really be feared. We deal with what is in front of us. I share our story with anyone who wants to know. I had my first opportunity to share our story at Kosair Children's Hospital this past weekend and today I was contacted by another group at Kosair about other possibilities. How honored I feel! If I can help one other family, by sharing our story with a positive outcome, I have done what God needs me to do.
Beckett is one amazing little boy and I can't wait to see what possibilities are in store for him.