JourneyWithTheCrosiers: PRAY!

Monday, October 18, 2010

PRAY!

I've invited people on FB, posted about it on BabyCenter, sent emails, told people in person, continually thought about it all. day. long! I cannot wait to feel the amazing power of prayer on Wednesday. Please visit here to see the event, Spina Bifida Worldwide Day of Prayer, in its entirety.

There have been many days when we needed to feel peace the most that it simply came. My only explanation is the power of prayer. Our church family has been amazing and I cannot imagine receiving news like we did without that support. We are so blessed to have an amazing support system of family and friends.

The friendships I have formed with my fellow SB mommas is unlike anything I have ever experienced. Knowing that we all have experienced the same feelings, doctor's appointments, surgeries, fears, and joys is such a comforting experience.

I want to share some of my favorite cutie pie kiddos...

Jet Charlie Kingsley Madison

Caleb Nickolas Alex Grey

Annabelle Davis Nate Jacob Nate

Please remember to pray on

Wednesday, October 20, 2010

(and every day please)

Check back in a couple of days for a guest post from Daddy...one you will for sure want to read!

3 comments:

Aunt HaU said...: I have prayed for Beckett and the Crosiers every night since we've heard the news so tomorrow afternoon will certainly be no different, well maybe except for it will be a prayer COMPLETELY dedicated to Beckett and the Crosiers. I hope God's power overwhelms you all tomorrow and is totally uplifting, as I'm sure it will. What a great feeling it will be! LOVE YOU RODNEY, MEGHAN, PAISLEY AND BECKETT!!!!; October 19, 2010 at 10:17 AM
krousehouse said...: How could you NOT want to pray when you see Beckett's precious face! He is so cute, and that look says - "C'mon people - I'm worth it!"; October 19, 2010 at 5:51 PM
Unknown said...: The prayer was powerful stuff for sure. :); October 23, 2010 at 4:12 PM

Beckett's Beginning

6/30/10: Born at 1:20 pm, 8 pounds 7 ounces, 20 inches long
7/1/10: Myelomeningocele repair surgery and insertion of EVD (exterior ventricular drain) to temporarily drain fluid from the brain. 2:45 pm-6:45 pm. Off the ventilator in recovery room. We saw him around 7:30.
7/2/10: Lots of waiting and staring at our beautiful boy! Finally ready to eat for the first time around 5:00 pm after the anesthesia wore off. What a relief!
7/3/10: Beckett was in a lot of pain as the anesthesia was completely gone by this point. Pain meds/Tylenol today!
7/4/10: Bandages from back incision removed.
7/9/10: Removal of EVD and shunt placement. 1:15 pm-5:30.
7/15/10: "Flip Day!" Beckett was given the okay to be on his back today, which means...we finally got to hold him! Lots of snuggling! :)
7/19/10: VCUG-normal. :) Hip Ultrasound-normal. :) Renal Ultrasound-normal. :) Circumcised.
7/20/10: HOME!!! After 20 days in the NICU. Discharge weight: 8 pounds 6.7 ounces.
7/23/10: First visit to see Dr. Nassim. Weight: 8 pounds 6.7 ounces.
7/29/10: Suture removal and wound check with Joy at Dr. Moriarty's office. No problems.
Weight check/One month check-up with Dr. McMonigle. 8 pounds 12 ounces (30th %). 21 1/4 inches long (75th %). Head circumference 37 cm (50th %). All looks great! :)
8/9/10: No more weight checks needed for this big guy... 9 pounds 7 ounces!!!!
8/11/10: First Steps Case Conference...Beckett will receive PT once a week for one hour. There is no real concern with his development at this point, but he qualifies for services, so he might as well get them!
9/1/10: Head CT...all normal. A little fluid. Back Dec. 15 for an MRI.
12/15/10: MRI. Fluid in the ventricles similar to the day the shunt was placed on July 9. Shunt revision on Friday. :(
12/17/10: New shunt placed by Dr. Moriarty. New location...behind the right ear instead of the frontal location! :) In Kosair Children's Hospital until 12/19/10.