JourneyWithTheCrosiers: MRI on Wednesday

Tuesday, December 14, 2010

MRI on Wednesday

When you say your prayers before bed tonight...

Say an extra for us please.

When you are getting ready in the morning...

Say one more prayer please.

When you are getting ready to eat lunch...

Say another prayers please.

Beckett has a routine MRI scheduled for tomorrow at noon. We are arriving at 10:30 with last bottle at 6:30 am (will be difficult for a very routine Beckett). We have no reason to believe that his shunt is not functioning properly, however I will be SO glad when we know for sure. We have an appointment with Dr. Moriarty, his neurosurgeon, following the MRI for the results. I am also very nervous because Christmas is only 10 days away and if something is wrong that needs to be "adjusted" that will be cutting it awfully close to the holiday. On top of the test tomorrow he also started with a pretty nasty cold on Sunday. He is snotty, coughing, sneezing... just a mess and so pitiful. First illness AT ALL, so we are very lucky.

Hoping for good news tomorrow and peace of mind.

5 comments:

Joanna said...: PRAYING! And I can't get over how BIG he is getting! He's still a little smiley bug and so precious. Love to you all!; December 14, 2010 at 10:31 PM
Terry, Leslie, Noah, Allie, Laynie & Gracie said...: I will be praying!!!; December 14, 2010 at 10:35 PM
Vesti said...: We are praying!!; December 15, 2010 at 1:12 AM
Kiersten Hoehn said...: I will pray! Where did you do your picture at the top? I love that!!; December 15, 2010 at 3:30 PM
Jill said...: Just saw your update on facebook. :( Big hugs and lots of prayers for your little man. Glad you caught it before it caused him any trouble. I'll be praying for you guys xoxo; December 15, 2010 at 7:31 PM

Beckett's Beginning

6/30/10: Born at 1:20 pm, 8 pounds 7 ounces, 20 inches long
7/1/10: Myelomeningocele repair surgery and insertion of EVD (exterior ventricular drain) to temporarily drain fluid from the brain. 2:45 pm-6:45 pm. Off the ventilator in recovery room. We saw him around 7:30.
7/2/10: Lots of waiting and staring at our beautiful boy! Finally ready to eat for the first time around 5:00 pm after the anesthesia wore off. What a relief!
7/3/10: Beckett was in a lot of pain as the anesthesia was completely gone by this point. Pain meds/Tylenol today!
7/4/10: Bandages from back incision removed.
7/9/10: Removal of EVD and shunt placement. 1:15 pm-5:30.
7/15/10: "Flip Day!" Beckett was given the okay to be on his back today, which means...we finally got to hold him! Lots of snuggling! :)
7/19/10: VCUG-normal. :) Hip Ultrasound-normal. :) Renal Ultrasound-normal. :) Circumcised.
7/20/10: HOME!!! After 20 days in the NICU. Discharge weight: 8 pounds 6.7 ounces.
7/23/10: First visit to see Dr. Nassim. Weight: 8 pounds 6.7 ounces.
7/29/10: Suture removal and wound check with Joy at Dr. Moriarty's office. No problems.
Weight check/One month check-up with Dr. McMonigle. 8 pounds 12 ounces (30th %). 21 1/4 inches long (75th %). Head circumference 37 cm (50th %). All looks great! :)
8/9/10: No more weight checks needed for this big guy... 9 pounds 7 ounces!!!!
8/11/10: First Steps Case Conference...Beckett will receive PT once a week for one hour. There is no real concern with his development at this point, but he qualifies for services, so he might as well get them!
9/1/10: Head CT...all normal. A little fluid. Back Dec. 15 for an MRI.
12/15/10: MRI. Fluid in the ventricles similar to the day the shunt was placed on July 9. Shunt revision on Friday. :(
12/17/10: New shunt placed by Dr. Moriarty. New location...behind the right ear instead of the frontal location! :) In Kosair Children's Hospital until 12/19/10.