JourneyWithTheCrosiers: NICU Tour

Wednesday, May 19, 2010

NICU Tour

I'll update tomorrow with details of tonight's events, but all in all things went very well. I did not realize how overwhelming a "tour" would be, but I am exhausted! Learned lots that we are so thankful for knowing ahead of time. However, hearing all the details and cans and can'ts, makes all the thoughts of "we'll worry about it when the time comes" a reality of that time being here. Head still held high, just a little dose of reality this evening. Please continue praying; I feel them as I close my very tired eyes.

2 comments:

Terry, Leslie, Noah, Allie, Laynie & Gracie said...: I will continue to pray! I can't believe you are getting so close!; May 20, 2010 at 2:27 PM
The Utz Family said...: Keeping you guys in our thoughts and prayers!; May 21, 2010 at 9:56 AM

Beckett's Beginning

6/30/10: Born at 1:20 pm, 8 pounds 7 ounces, 20 inches long
7/1/10: Myelomeningocele repair surgery and insertion of EVD (exterior ventricular drain) to temporarily drain fluid from the brain. 2:45 pm-6:45 pm. Off the ventilator in recovery room. We saw him around 7:30.
7/2/10: Lots of waiting and staring at our beautiful boy! Finally ready to eat for the first time around 5:00 pm after the anesthesia wore off. What a relief!
7/3/10: Beckett was in a lot of pain as the anesthesia was completely gone by this point. Pain meds/Tylenol today!
7/4/10: Bandages from back incision removed.
7/9/10: Removal of EVD and shunt placement. 1:15 pm-5:30.
7/15/10: "Flip Day!" Beckett was given the okay to be on his back today, which means...we finally got to hold him! Lots of snuggling! :)
7/19/10: VCUG-normal. :) Hip Ultrasound-normal. :) Renal Ultrasound-normal. :) Circumcised.
7/20/10: HOME!!! After 20 days in the NICU. Discharge weight: 8 pounds 6.7 ounces.
7/23/10: First visit to see Dr. Nassim. Weight: 8 pounds 6.7 ounces.
7/29/10: Suture removal and wound check with Joy at Dr. Moriarty's office. No problems.
Weight check/One month check-up with Dr. McMonigle. 8 pounds 12 ounces (30th %). 21 1/4 inches long (75th %). Head circumference 37 cm (50th %). All looks great! :)
8/9/10: No more weight checks needed for this big guy... 9 pounds 7 ounces!!!!
8/11/10: First Steps Case Conference...Beckett will receive PT once a week for one hour. There is no real concern with his development at this point, but he qualifies for services, so he might as well get them!
9/1/10: Head CT...all normal. A little fluid. Back Dec. 15 for an MRI.
12/15/10: MRI. Fluid in the ventricles similar to the day the shunt was placed on July 9. Shunt revision on Friday. :(
12/17/10: New shunt placed by Dr. Moriarty. New location...behind the right ear instead of the frontal location! :) In Kosair Children's Hospital until 12/19/10.